A roadie and some fair food

So, we met with Spike the pulmonologist yesterday, and here is an overview of how things went:

A) The doctor agrees with the other doctors that this looks like a case of LAM, but there a some things that aren't typical for LAM, for example the asymmetry of the cysts in the lungs, that make him feel that seeing a doctor that has seen more cases of LAM would be a good idea. This doesn't mean it isn't LAM, but in most cases they are symmetrical.

B) There are new cysts, and an existing cyst has gotten quite a bit larger. What is kind of scary about this is that the cyst is pretty close to the lung wall, so we need to be extra observational due to the risk of lung collapse. He didn't feel it was imminent but he did say that avoiding things like flying would be a good idea.

C) We already had an appointment scheduled in Denver for next week, so we are still going to go, but Spike is calling an associate at the National Jewish Medical and Research Center by the name of Dr. Kevin Brown. He is one of the leading doctors working with LAM in the country, and his name was actually given to us by the founder of the LAM Foundation.

So my mom is going to stay here with Elora and the dogs while we make this jaunt down to Denver. We will be staying with friends, and hopfully back before the end of the week. Since all of my scans and breathing tests are up to date the doctors should be able to see all of them in advance.

In other news, Thad and I went to the fair with friends Mike and Morgan last night. We ate and ate and ate, and walked around. It was pretty fun. Things started with fried cheese curds, then moved on to a Viking, which was followed up with turkey legs, and finally a fried Snickers. I regret not getting an Indian taco, but have decided that this is the year I will make some fry bread and enjoy an Indian taco in the comfort of my own home.

Here are pictures of the men with their turkey legs.





If you'll excuse me, my butt needs to get rid of some of this fair food.